Meet Anna, fundraising rock star! Anna Cummins is a very special little sister. Her sister Maddy was diagnosed with Rett Syndrome at age 2 1/2 and having a sister with a disability asks a lot of other siblings. But Anna plays an amazing role in the Rett Syndrome world. Anna is a bright, beautiful and […]CONTINUE READING →
The Columbine Courier published an interview with the Moore family! Local family hoping for a cure At first blush, South Jeffco resident Tatum Moore appears to be a pretty typical 10-year-old girl. She enjoys dancing and twirling to music, and spends a lot of time chasing her 5-year-old brother, Tegan, around the living room. Tegan […]CONTINUE READING →
Science Update by Dr. Benke – July 2016 I had the pleasure participating in the 14th Rett Syndrome Symposium in Illinois end of June. The Symposium was sponsored by Rettsyndrome.org, united Rett and Rett-related disorders (CDKL5, FOXG1 and MeCP2 dup) with their support groups. Topics discussed included basic research (“how do things work?”), translational research […]CONTINUE READING →
Knight of Columbus Charity Tournament Featuring $10,000 Cash Grand Prize for Hole in One RMRA is one of four beneficiaries at this golf event! Tournament Details: Scramble Format Other prizes for longest drive, closest to pin Raffle prizes after tournament Open snack bar after tournament Register/Donate at: http://www.kofc11851.org/golf_teams.html To register and pay, please make checks […]
Please join us for a fun family walk to help find a cure for Rett Syndrome! Join us for a fun family event to help find a cure for Rett Syndrome! The Walk n’ Roll is Rocky Mountain Rett Association’s (RMRA) signature event to bring the community together to raise awareness and money to help […]
Risers4Rett is “the” annual Fly Fishing fundraiser of the Rocky Mountain Rett Association. This year the event will be held September 22nd-25th 2016. This event helps raise important funds for the Rett Clinic at Children’s Colorado Hospital that will serve over 72 families in 2016. For details, go to the Risers 4 Rett homepage.