Details coming soon!
The 30th annual Dark Horse Saloon and Restaurant golf Tourney at Flatiron Golf Course in Boulder, CO is on Friday, June 27,2013. Thirty six teams compete in a 4 person best ball scramble. Various prizes will given out to the teams that finish in 1st, 2nd or 3rd.There are also prizes given out for longest drive, [...]
Bring your roller skates, your strollers, your sneakers, your friends, and your wallets. Join us for our 5th Annual Rett Syndrome Walk N’ Roll at Clement Park on August 9, 2013. This event is not only a great way to spend a Saturday morning, but will touch your heart when you see our girls and [...]
Shelby Huisingh was in the OR at Children’s for over seven hours in early June. Shelby is currently in a body cast from armpits to ankles. At this point it looks like Shelby may be in a body cast for at least another ten weeks and then get reevaluated. The Huisingh’s are basically homebound until [...]CONTINUE READING →
Mia Nilsen, her mom, Amy, and dad, Oyvind have welcomed two beautiful twins. The twins names are Carl Henrik Nilsen and Nora Elise Nilsen. They were born on March 25. Both weighed about 5 1/2 pounds. We are so happy for the Nilsen family. To have Mia with RS, and two thriving little babies, it [...]CONTINUE READING →
We wanted to stop and thank Mrs. Carole Benjamin for her role for our girls for many years. For over eight years Carole has been the driving force in our region when it came to raising awareness, supporting families, and raising money for Rett! Carole stepped down on RMRA’s board at the end of the [...]CONTINUE READING →