October is Rett Awareness Month! The team at the RMRA developed a social media outreach plan hat will include photos, stories, RMRA events and Rett facts. Please follow RMRA’s Facebook page and like, comment and share the posts. We are also working to engage our community in Wear Purple for Rett Awareness on October 21st. […]CONTINUE READING →
Enroll now for the Natural History Study The NIH funded Natural History Study has been in the works for several years. In October 2014 a co-operative agreement was announced to fund research for the study with the Research Consortium to be led by Dr. Alan Percy University of Alabama at Birmingham. The study is funded […]CONTINUE READING →
Go Team Reps for Rett in the Do More Charity Challenge On October 1st and 2nd more than 200 athletes will be sweating to support their passion organization; and six of them are sweating specifically for the Rocky Mountain Rett Association. Team Reps for Rett with Scott, Jasmine, Diana, Kristen, Matt and Dan, all well-seasoned, […]CONTINUE READING →
Risers4Rett is “the” annual Fly Fishing fundraiser of the Rocky Mountain Rett Association. This year the event will be held September 22nd-25th 2016. This event helps raise important funds for the Rett Clinic at Children’s Colorado Hospital that will serve over 72 families in 2016. For details, go to the Risers 4 Rett homepage.
The Rett Clinic at Children’s Hospital Colorado is very excited to host our 1st Rett Family Symposium. We will host clinic specialists and guest speakers to talk on a range of topics for families who have a child with Rett, CDKL5, MeCP2 Duplication and FOXG1. We hope that each family walks away with valuable knowledge […]
Please pencil this tentative date for our annual Spaghetti Dinner into your calendar! It will be again in Longmont and hosted by the Elk Lodge. We will update this event post when the time comes closer. In the meantime, check out the 2016 pictures … and start collecting items for the silent auction!