Participate in the Natural History Study Thanks to the Rett community at large, the second rendition of the Natural History Study is underway at 15 sites around the US! But we still continue to push for more participation in this critical study that seeks girls and boys of all ages with Rett syndrome (classical or atypical), […]CONTINUE READING →
IN THE MEANTIME This is a guest blog by Jennifer L Hill, Family Home Health Services When you are with family home health services, you are with family! Contact: 720 298 5259 Due to the rarity of Rett syndrome, very little has been published about long term prognosis. While medications, physical and speech therapy along […]CONTINUE READING →
Risers 4 Rett Event Director Patrick Callahan gives us a summary of the spring 2018 event: We kicked-off the spring 2018 event around dusk on Thursday, April 26th at the Almont resort. Welcoming approximately 50 participants and 25 guides that evening, we shared some good grub (Elk Brats and Buffalo Burgers), put on by Mike […]CONTINUE READING →
RMRA has organized the Walk n’ Roll now for the past 12 years every summer. The board felt it was time to take a break and offer something different in lieu of the walk. So this year, we are thanking you, our supportive Rett community and celebrate what everyone has done together. Please pencil the […]
The Rett Clinic at Children’s Hospital Colorado is very excited to announce the 3rd Rett Clinic Family Symposium. It’s a free event! Please pencil the date into your calendar. More info will be available when the date comes closer. In the meantime, check out what was discussed at the 2nd Rett Clinic Family Symposium.
Fall Event: Where the East River and the Taylor River meet to form the mighty Gunnison! Risers 4 Rett spring event is one of two annual Fly Fishing fundraisers of the Rocky Mountain Rett Association. Our fall event will be held on September 27h to 30th 2018. It encompasses an amazing three days of fishing, […]