Monthly Archives: July 2016

  • Science Update by Dr. Benke – July 2016 I had the pleasure participating in the 14th Rett Syndrome Symposium in Illinois end of June. The Symposium was sponsored by Rettsyndrome.org, united Rett and Rett-related disorders (CDKL5, FOXG1 and MeCP2 dup) with their support groups. Topics discussed included basic research (“how do things work?”), translational research […]

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  • The 32nd annual World Famous Dark Horse Bar & Grill Golf Tournament Thank you to all the participants, sponsors, and staff from the Dark Horse for making the 32nd Annual World Famous Dark Horse Bar & Grill Golf Tournament a really fun and successful event.   At the Flatirons Golf Course in Boulder, CO on […]

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  • Our silent auction committee is still looking for items. Please contact them directly to schedule a drop off.   Covering the west and south side of Denver: Carole Benjamin – mom to Samantha, age 17 carolewb@comcast.net Covering the north side of Denver: Carrie Rose – mom to Allison, age 18 720-234-7673 carrie.rose-matens@rmrett.org Covering the east […]

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