Author Archives RMRA

  • Rett Clinic is looking for older Rett patients This is a request submitted by the Rett Clinic at Children’s Hospital Colorado   As a clinic we are hoping to reach out to the older population of those diagnosed with Rett, CDKL5  and other Rett-like disorders. First, we would like to make sure to invite you […]

    CONTINUE READING
  • The 2017 Judi Masters Award honors AlloSource   Judi Masters was an incredible promoter of knowledge and information about Rett Syndrome. She engaged her community in supporting all children with Rett. She made amazing inroads into building this awareness. In fact many past and existing RMRA board of directors and volunteers got involved thanks to […]

    CONTINUE READING
  • Get a Birthday Party by Brandi If your Rett child has a birthday in January, February or March First Come – First Serve Newly founded organization Birthdays by Brandi Foundation has partnered with the Rocky Mountain Rett Association to sprinkle happiness and share smiles with children on their special day. Birthdays are a milestone that should be […]

    CONTINUE READING
  • Thank you all for coming to the 2nd Rett Clinic Family Symposium The second Rett Clinic Family Symposium was held on September 30th 2017. The event was organized by the Rett Clinic at the Children’s Hospital Colorado and sponsored by Rocky Mountain Rett Association. Six clinic specialists and guest speakers were on site to discuss […]

    CONTINUE READING
  • Over $8,000 raised on Colorado Gives Day Thank you so much for supporting Rocky Mountain Rett Association on Colorado Gives Day! You helped us raise over $8,000 on Tuesday – that is enough to send 11 more children to the Rett Clinic at Children’s Hospital Colorado. There were an astounding $36 Million Dollars raised on […]

    CONTINUE READING
  • Support RMRA with Amazon Smiles   Ever heard of Amazon Smile? Well, are you an avid online shopper? Maybe even use Amazon regularly? Then we would appreciate if you would switch over to Amazon Smile. Amazon Smile works like the Amazon you know, with the same login info, same product offerings and same prices (same […]

    CONTINUE READING
  • Give Where You Live on December 5th or Schedule Your Donation NOW   There are more than 20,000 charitable nonprofits in the state of Colorado, representing six percent of our state’s economy. In 2010, an annual, statewide movement was started where all Coloradans come together with the common goal to strengthen the community by helping […]

    CONTINUE READING
  • This blog was written by Sarah Allen, Aunt to Brooke Allen, in support of Rett Awareness Month – October 2017: My niece Brooke Rett Syndrome is one of those things that most people, myself included, never hear about until it directly affects them or someone you know. December of 2015… that’s when our family became […]

    CONTINUE READING
  • Team Rises 4 Rett was invited to promote the Risers 4 Rett fall tournament on live TV. First on Denver 9 News, Colorado & Company and then on Denver Channel 2 – Colorado’s Best. Go to the Risers 4 Rett news page to watch the video.    

    CONTINUE READING
  • Reps For Rett wins $10,000 for RMRA On September 30th and October 1st, the final stage of the Do More Charity Challenge took place at the Front Range Crossfit in Denver, CO. It was the 3rd annual cross fit challenge comprised by three parts, fundraising, social media and a fitness challenge – cross fit style. […]

    CONTINUE READING
(I use my own pagination)s
Copyright Rocky Mountain Rett Association