Slice of Rett Life – From a Grandma’s Perspective Hi, I’m Nancy… the Nana of a most beautiful Rett baby girl. I guess she’s not a baby anymore; she’s 3 years old! I’ll start by letting you know she’s my first grandbaby. She is an absolute light in my life, a most loving soul, and […]
CONTINUE READINGMagical Day – RMRA’s first Mommy & Me Makeover Magic On February 12, 2017, Rocky Mountain Rett Association hosted a new event, Mommy & Me Makeover Magic. What started as an ad hoc idea by RMRA Board Member Bob Shorma, turned into an intimate and fantastic event for 10 mothers and their Rett daughters. […]
CONTINUE READINGRMRA receives $15,000 prize money from Reps for Rett team as part of the Do More Charity Challenge At RMRA’s December board meeting, special guests from the Reps for Rett team Kristen Olson, Jasmine Dever and Scott Olson visited to hand over a check in the amount of $15,000. The Reps for Rett […]
CONTINUE READINGGift-Giving Made Easy The holidays are always a busy time of year – preparing for family to come into town, getting the house ready, and then there are the gifts! What to get? We have three suggestions for you: King Sooper Cards Did you know that all Kroger affiliates donate 5% of every dollar spent […]
CONTINUE READINGLock in your spot by December 31st, 2016 for a $300 Discount Risers 4 Rett Spring: April 27th – 29th, 2017 We are accepting 20 teams. We use a team format so you and a friend will join together for a healthy competition against other teams. Individual participants are always welcomed as well and will […]
CONTINUE READINGBeat the Busy Holiday Season and Donate Early Schedule Your Donation NOW Tuesday, December 6th, 2016 is Colorado Gives Day. It’s more than just a day. It’s a movement that inspires and unites thousands of donors to support their favorite causes online through ColoradoGives.org. On this one day, your donation is worth more than on […]
CONTINUE READINGTEA PARTY DREAMS By Vanessa Covington In the corner of my daughter’s room sits a child-size wicker chair. Not quite blue. Not quite Lavender. I bought it for Martilee’s first birthday with anticipation of tea parties, teddy bears and dress-up bonnets. I dreamed of special mommy-daughter times—escapes from the world of her two older brothers […]
CONTINUE READINGThank you all for coming! The first Rett Clinic Family Symposium was held on October 1, 2016. The event was organized by the Rett Clinic at the Children’s Hospital Colorado and sponsored by Rocky Mountain Rett Association. Eight clinic specialists and guest speakers were on site to discuss a range of topics for families, who […]
CONTINUE READINGOctober is Rett Awareness Month! The team at the RMRA developed a social media outreach plan hat will include photos, stories, RMRA events and Rett facts. Please follow RMRA’s Facebook page and like, comment and share the posts. We are also working to engage our community in Wear Purple for Rett Awareness on October 21st. […]
CONTINUE READINGEnroll now for the Natural History Study The NIH funded Natural History Study has been in the works for several years. In October 2014 a co-operative agreement was announced to fund research for the study with the Research Consortium to be led by Dr. Alan Percy University of Alabama at Birmingham. The study is funded […]
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