A huge thank you to Denver 9 News and Denise Plante from Colorado & Company for having Dr. Benke and Carrie Rose-Matens on the show on 7/31 to promote the Walk n’ Roll!
CONTINUE READINGT-Shirt fundraiser is now live until July 23rd! Support the RMRA and the Rett Clinic by purchasing a T-Shirt! In celebration of our 13th Annual Walk n’ Roll, we have put together a beautiful collection of T-Shirts that you can now conveniently order online and get delivered to your home before the day […]
CONTINUE READINGRett Clinic at Children’s Hospital Colorado Receives Clinical Research Center of Excellence Award Morrison, CO – The Rett Clinic at Children’s Hospital Colorado was designated a “Clinical Research Center of Excellence” by Rettsyndrome.org. This dedication recognizes the highest levels of national-level clinical care and research partnership. At the heart of the Clinic is a team […]
CONTINUE READINGTo honor his sister Maddy, who is a Rett Syndrome patient, little brother Luke started a penny drive on behalf of RMRA. He and his preschool buddies at Chapel Hill – The Road raised $100! Isn’t he adorable? Thank you Luke 💝
CONTINUE READINGBig success at the Annual Spaghetti Dinner! It was a beautiful evening on Saturday, April 22nd and over 170 guests came out to the Tri-City Elks Lodge in Louisville, CO to enjoy RMRA’s annual Spaghetti Dinner. It was the biggest turnout ever! The guests dined on pasta provided by the Elks – please give them […]
CONTINUE READINGCalling Sponsors! RMRA is looking for sponsors to support the 13th Annual Walk n’ Roll happening on Saturday, August 12th at Clement park in Littleton. The event attracts over 400 people and all proceeds benefit the Rett Clinic at Children’s Hospital Colorado. Different sponsorship levels are available, please contact info@rmrett.org for more info. Walk […]
CONTINUE READINGRisers 4 Rett – A Fly Fishing Tournament for a Great Cause Blog author: Brian Hartley, Risers 4 Rett Committee member Just a few weeks ago, 28 teams came together for a memorable weekend raising their rods, and in so doing raising a great deal of money for a very deserving cause. In its […]
CONTINUE READINGQualifying for Social Security Disability Benefits with Rett Syndrome Let us give you the lowdown on social security disabilty benefits. Rett syndrome is an extremely rare neurological disorder almost exclusively found in girls. While it is not fatal, most people with the condition require lifelong medical assistance in some capacity. This can be taxing mentally, […]
CONTINUE READINGSlice of Rett Life – From a Grandma’s Perspective Hi, I’m Nancy… the Nana of a most beautiful Rett baby girl. I guess she’s not a baby anymore; she’s 3 years old! I’ll start by letting you know she’s my first grandbaby. She is an absolute light in my life, a most loving soul, and […]
CONTINUE READINGMagical Day – RMRA’s first Mommy & Me Makeover Magic On February 12, 2017, Rocky Mountain Rett Association hosted a new event, Mommy & Me Makeover Magic. What started as an ad hoc idea by RMRA Board Member Bob Shorma, turned into an intimate and fantastic event for 10 mothers and their Rett daughters. […]
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