Enroll now for the Natural History Study The NIH funded Natural History Study has been in the works for several years. In October 2014 a co-operative agreement was announced to fund research for the study with the Research Consortium to be led by Dr. Alan Percy University of Alabama at Birmingham. The study is funded […]
CONTINUE READINGGo Team Reps for Rett in the Do More Charity Challenge On October 1st and 2nd more than 200 athletes will be sweating to support their passion organization; and six of them are sweating specifically for the Rocky Mountain Rett Association. Team Reps for Rett with Scott, Jasmine, Diana, Kristen, Matt and Dan, all well-seasoned, […]
CONTINUE READINGOn Saturday August 13th, the Rocky Mountain Rett Association hosted its signature event, the 12th Annual Walk n’ Roll. It was a beautiful day in Colorado with blue skies and without the usual blazing August heat. About 250 people participated in the event and many of them strolled around the scenic Lake at Robert […]
CONTINUE READINGMeet Anna, fundraising rock star! Anna Cummins is a very special little sister. Her sister Maddy was diagnosed with Rett Syndrome at age 2 1/2 and having a sister with a disability asks a lot of other siblings. But Anna plays an amazing role in the Rett Syndrome world. Anna is a bright, beautiful and […]
CONTINUE READINGThe Columbine Courier published an interview with the Moore family! Local family hoping for a cure At first blush, South Jeffco resident Tatum Moore appears to be a pretty typical 10-year-old girl. She enjoys dancing and twirling to music, and spends a lot of time chasing her 5-year-old brother, Tegan, around the living room. Tegan […]
CONTINUE READINGScience Update by Dr. Benke – July 2016 I had the pleasure participating in the 14th Rett Syndrome Symposium in Illinois end of June. The Symposium was sponsored by Rettsyndrome.org, united Rett and Rett-related disorders (CDKL5, FOXG1 and MeCP2 dup) with their support groups. Topics discussed included basic research (“how do things work?”), translational research […]
CONTINUE READINGThe 32nd annual World Famous Dark Horse Bar & Grill Golf Tournament Thank you to all the participants, sponsors, and staff from the Dark Horse for making the 32nd Annual World Famous Dark Horse Bar & Grill Golf Tournament a really fun and successful event. At the Flatirons Golf Course in Boulder, CO on […]
CONTINUE READINGOur silent auction committee is still looking for items. Please contact them directly to schedule a drop off. Covering the west and south side of Denver: Carole Benjamin – mom to Samantha, age 17 carolewb@comcast.net Covering the north side of Denver: Carrie Rose – mom to Allison, age 18 720-234-7673 carrie.rose-matens@rmrett.org Covering the east […]
CONTINUE READINGRMRA’s Annual Spaghetti Dinner Brought in Over $6000! The Rocky Mountain Rett Association invited its members and the public to a Spaghetti Dinner with Silent Auction and Bingo Night on April 23rd, 2016 in Louisville, CO. It was a fun night out for the entire family. From small to big, everyone enjoyed Spaghetti’s! […]
CONTINUE READINGRisers4Rett Spring event – Get-away for a great cause! We just finished the inaugural Risers4Rett spring event from April 28th to 30th, a two day float fishing and wade fishing event down the Gunnison River. The funds raised benefit the Rocky Mountain Rett Association. After three successful fall events in Basalt Colorado, The Risers4Rett committee […]
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