general information'S ARCHIVE

  • IN THE MEANTIME This is a guest blog by Jennifer L Hill, Family Home Health Services When you are with family home health services, you are with family! Contact: 720 298 5259 Due to the rarity of Rett syndrome, very little has been published about long term prognosis. While medications, physical and speech therapy along […]

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  • Rett Clinic is looking for older Rett patients This is a request submitted by the Rett Clinic at Children’s Hospital Colorado   As a clinic we are hoping to reach out to the older population of those diagnosed with Rett, CDKL5  and other Rett-like disorders. First, we would like to make sure to invite you […]

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  • The 2017 Judi Masters Award honors AlloSource   Judi Masters was an incredible promoter of knowledge and information about Rett Syndrome. She engaged her community in supporting all children with Rett. She made amazing inroads into building this awareness. In fact many past and existing RMRA board of directors and volunteers got involved thanks to […]

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  • Rett Clinic at Children’s Hospital Colorado Receives Clinical Research Center of Excellence Award Morrison, CO – The Rett Clinic at Children’s Hospital Colorado was designated a “Clinical Research Center of Excellence” by Rettsyndrome.org. This dedication recognizes the highest levels of national-level clinical care and research partnership. At the heart of the Clinic is a team […]

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  • Qualifying for Social Security Disability Benefits with Rett Syndrome Let us give you the lowdown on social security disabilty benefits. Rett syndrome is an extremely rare neurological disorder almost exclusively found in girls. While it is not fatal, most people with the condition require lifelong medical assistance in some capacity. This can be taxing mentally, […]

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