research'S ARCHIVE

  • Participate in the Natural History Study Thanks to the Rett community at large, the second rendition of the Natural History Study is underway at 15 sites around the US!  But we still continue to push for more participation in this critical study that seeks girls and boys of all ages with Rett syndrome (classical or atypical), […]

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  • Enroll now for the Natural History Study The NIH funded Natural History Study has been in the works for several years. In October 2014 a co-operative agreement was announced to fund research for the study with the Research Consortium to be led by Dr. Alan Percy University of Alabama at Birmingham. The study is funded […]

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  • Rett DM Drug Trial We invite male and female patients with Rett syndrome (RTT) who are 1-9.99 years of age with a mutation in the MECP2 gene, to take part in our Placebo-controlled trial of Dextromethorphan in Rett Syndrome research study JHM-IRB Study # NA_00064949, at the Kennedy Krieger Institute. We determine if the child […]

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  • Dr. Sakkubai Naidu has initiated a Placebo controlled drug trial of Dextromethorphan(DM) in children with Rett syndrome. It has been shown that a brain chemical glutamate and its receptor (NMDA) are markedly increased in the brain of young Rett patients. This increase has a neurotoxic effect that may be responsible for causing seizures, behavior problems […]

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