research'S ARCHIVE

  • Participate in the¬†Natural History Study Thanks to the Rett community at large, the second rendition of the Natural History Study is underway at 15 sites around the US!¬† But we still continue to push for more participation in this critical study that seeks girls and boys of all ages with Rett syndrome (classical or atypical), […]

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  • Enroll now for the Natural History Study The NIH funded Natural History Study has been in the works for several years. In October 2014 a co-operative agreement was announced to fund research for the study with the Research Consortium to be led by Dr. Alan Percy University of Alabama at Birmingham. The study is funded […]

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  • Rett DM Drug Trial We invite male and female patients with Rett syndrome (RTT) who are 1-9.99 years of age with a mutation in the MECP2 gene, to take part in our Placebo-controlled trial of Dextromethorphan in Rett Syndrome research study JHM-IRB Study # NA_00064949, at the Kennedy Krieger Institute. We determine if the child […]

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  • Dr. Sakkubai Naidu has initiated a Placebo controlled drug trial of Dextromethorphan(DM) in children with Rett syndrome. It has been shown that a brain chemical glutamate and its receptor (NMDA) are markedly increased in the brain of young Rett patients. This increase has a neurotoxic effect that may be responsible for causing seizures, behavior problems […]

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