Evelyn is a sweet 3 years old and has a CDKL5/Atypical Rett Disorder. She was a big healthy baby at birth, but after having a seizure at 2 weeks old we knew things were not right. Evelyn has always had development delays and still cannot walk, crawl, talk or feed herself. Her seizures are very hard to control. Progress is slow, but Evelyn does sit and move herself around the floor. She is gaining strength for crawling, standing and eventual walking. Her smile is amazing. Even with limited communication, her expressions and laughter bring so much joy. She is a sweetheart that melts the heart of everyone who meets her.