Silent Angels

  • Meet Brooke now 23 years old. She lives in Peyton, CO. Brooke likes swimming, horses, off-road riding, and inclusion with friends and family. She is the big sister to two younger sisters and she is the ruler of the household.

  • Ciana has an infectious laugh and smile, and is so lovable like all of our girls. She’s got a sassy side and isn’t afraid to show it. She is the oldest of three girls. Her mom told us the story to give us an idea about Ciana’s personality: One evening we all were watching a […]

  • Tara is not a typical Rett patient. Starting with the fact that she is 33 years old. She also has quite a different story than many of the more recently diagnosed Rett Syndrome patients. But back in the 80s and 90s not a lot about this disease was known, so in that respect, her story […]

  • Maddy is a fun, loving, beautiful, almost 13 year old! She is in 7th grade and loves hanging out with friends. She loves Harry Potter and The Wiggles. She uses a Tobii Communication Device to chat with family & friends. She even tells her mom that her cooking is “yucky” then cracks up laughing. Maddy […]

  • In the picture above, Brooke Allen is giving kisses to RMRA’s board member John Schaffner. “I’d never heard of Rett Syndrome until it became our whole world” -Justin Allen Brooke was recently diagnosed with Rett Syndrome and her family went from no knowledge of Rett to having it dominate their life in just a few […]

  • Mary Ann was born September 20th 2007. She loves to eat and laugh. Being tickled has to be one of her favorite things to engage in. She loves people and can be a flirt from time to time. She loves her freedom to run and roam around her environment and find new things to look […]

  • This girl is one of 10,000 girls born with Rett Syndrome. We call them “silent angels” because the majority of them cannot speak. They are suffering from a variety of symptoms, but they are tough and resilient. They are truly an inspiration to us all and please know that even though most of them can’t […]

  • This girl is one of 10,000 girls born with Rett Syndrome. We call them “silent angels” because the majority of them cannot speak. They are suffering from a variety of symptoms, but they are tough and resilient. They are truly an inspiration to us all and please know that even though most of them can’t […]

  • Most children with Rett Syndrome are suffering from a variety of symptoms, but they are tough and resilient. They are truly an inspiration to us all and please know that even though most of them can’t talk, they appreciate that you care and have shown that you are willing to learn about them. Thank you […]

  • This girl is one of 10,000 girls born with Rett Syndrome. We call them “silent angels” because the majority of them cannot speak. They are suffering from a variety of symptoms, but they are tough and resilient. They are truly an inspiration to us all and please know that even though most of them can’t […]

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