RMRA has achieved a lot since its interception. Nearly all of the work is done on a volunteer basis. We rely on donations to provide the supportive services and resources to girls and their families, from engaging in advocacy, education and awareness efforts, and raising funds to support the search for a cure and improved treatment options. We have worked together to raise the money to form and continue to support the Rett Clinic at Children’s Hospital Colorado. Money is raised through contest participation, donations, community events, our flagship event, the annual Walk n’ Roll and bi-annual Riser 4 Rett Tournaments.

How you can help

Give

Financial donations are always appreciated. Medical care and research is very expensive. The more funds we raise, the more children we can accept at the Rett Clinic. Donate conveniently through Colorado Gives, at ColoradoGives.org – 100% of your funds will help Rett Syndrome patients.

Collect Donations

Help run an ARC collection drive. ARC has created fundraising opportunities where organizations can collect items for ARC and then ARC will give a monetary donation to RMRA.

Host a Fundraiser

Organize an event to raise funds and increase awareness of Rett Syndrome. For example: The Douglas County Rock n’ Rollers had a derby night showing Girl Power and passing out information for Rett. Then, they even brought their competitors to the walk! Below are a few ideas that can work well in various settings.

  • Host a neighborly Spaghetti dinner, pancake breakfast or a brunch
  • Organize a bake sale
  • Have your garage sale do double duty and also ask for donations
  • Encourage your kids to have a lemonade stand
  • Hold a dance party
  • Invite your friends to a wine & cheese tasting

How to draw attention to Rett Syndrome:

  • Specifically ask for donations to RMRA in lieu of host gifts. You can direct them to our donation page or ask them for checks which you can easily send to us by mail after the party
  • Tell your friends that the event is benefiting Rett Syndrome and include a link to RMRett.org
  • Decorate your party in purple
  • Give a five minute introduction about Rett Syndrome during the party
  • Ask people to wear purple to honor Rett syndrome
  • Make big signs with Rett facts to increase awareness

Volunteer at our Events

Our biggest event is the annual Walk n’ Roll held in the summer. We are actively looking for committee members to organize, set up, promote, run events, assemble auction baskets, pick up supplies, and provide creative new ideas. If you are interested in donating your time and/or expertise to make this event even better than last year, please email info@rmrett.org.

Ask your Company for a Sponsorship

Many companies encourage volunteer opportunities benefiting non-profit organizations. Create your own company team and support Rett events. In fact, many companies donate goods/services to silent auctions, have donor match programs and various grant opportunities. Ask your company to sponsor our Angels to support their care and achieve our quest for a cure.

Shop

Yes, you read right, we said ‘shop’! Companies like King Soopers or Amazon are donating a percentage of the amount spent! Read how it works in our blog “3 Easy Ways to help the RMRA!

Share your Skills

Do you have a unique skill that you can donate? Maybe marketing, publicity, musical, technology, or any other skill set that might help promote our cause and girls.

Support a Family

One of RMRA goals is to provide family support. Consider adopting a family/girl in the Rocky Mountain Region. Could you serve as a hospital liaison that provides support during extended hospital stays? Do you or someone you know have a medical background and could provide occasional, much needed, respite care?

Share your Expertise for Networking

Help us recruit talented new board members/or skilled positions to help a small community with big needs. Organize digital awareness campaigns, generate business leads and explore additional opportunities that can benefit our girls.

 

Have more ideas? We would love to hear them. Talk to us and email info@rmrett.org

Events RMRA Blog