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Rocky Mountain Rett Association
Home
About RMRA
Our Team
Our Mission, Vision & Value
Our Friends
Contact
What is Rett
Rett Resources
Rett Clinic
RMRA Events
News
RMRA Rett Shop
Take Action
Get Involved
Take Action
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About RMRA
Our Team
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Our Friends
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Folder: About Rett Syndrome
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What is Rett
Rett Resources
Rett Clinic
RMRA Events
News
RMRA Rett Shop
Folder: Take Action
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Take Action
Get Involved
Take Action
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Featured
Risers 4 Rett Fall 2026 Fly-Fishing Tournament
Sep 24
Sep 24, 2026 – Sep 27, 2026
Risers 4 Rett Fall 2026 Fly-Fishing Tournament
Sep 24, 2026 – Sep 27, 2026
Sep 24, 2026 – Sep 27, 2026
Mardi Gras Fête 2027
Feb 20
Feb 20, 2027
Mardi Gras Fête 2027
Feb 20, 2027
Feb 20, 2027


*RMRA 2026 MG Kids Posters_Brooke.jpg View fullsize
*RMRA 2026 MG Kids Posters_Ellie.jpg View fullsize
*RMRA 2026 MG Kids Posters_Georgina.jpg View fullsize
*RMRA 2026 MG Kids Posters_Hallie.jpg View fullsize
*RMRA 2026 MG Kids Posters_Kam.jpg View fullsize
*RMRA 2026 MG Kids Posters_Matilda.jpg View fullsize
*RMRA 2026 MG Kids Posters_Mia.jpg View fullsize
*RMRA 2026 MG Kids Posters_Sophie.jpg View fullsize
*RMRA 2026 MG Kids Posters_Zoey.jpg View fullsize
*RMRA 2026 MG Kids Posters_Barrett.jpg View fullsize
*RMRA 2026 MG Kids Posters_Brooke.jpg
*RMRA 2026 MG Kids Posters_Ellie.jpg
*RMRA 2026 MG Kids Posters_Georgina.jpg
*RMRA 2026 MG Kids Posters_Hallie.jpg
*RMRA 2026 MG Kids Posters_Kam.jpg
*RMRA 2026 MG Kids Posters_Matilda.jpg
*RMRA 2026 MG Kids Posters_Mia.jpg
*RMRA 2026 MG Kids Posters_Sophie.jpg
*RMRA 2026 MG Kids Posters_Zoey.jpg
*RMRA 2026 MG Kids Posters_Barrett.jpg
News
Laissez les Bons Temps Rouler
Mar 26, 2026
Laissez les Bons Temps Rouler
Mar 26, 2026
Mar 26, 2026
Rett in Males: A Research Study
Mar 12, 2026
Rett in Males: A Research Study
Mar 12, 2026
Mar 12, 2026
Caregiver Study from the University of Denver
Jan 22, 2026
Caregiver Study from the University of Denver
Jan 22, 2026
Jan 22, 2026
A Successful Community Education Day 2025
Dec 11, 2025
A Successful Community Education Day 2025
Dec 11, 2025
Dec 11, 2025
Rolling 4 Rett: RMRA’s Windy, Wonderful Annual Picnic
Dec 11, 2025
Rolling 4 Rett: RMRA’s Windy, Wonderful Annual Picnic
Dec 11, 2025
Dec 11, 2025
October 2025 is Rett Syndrome Awareness Month Proclamation
Oct 16, 2025
October 2025 is Rett Syndrome Awareness Month Proclamation
Oct 16, 2025
Oct 16, 2025
Meet Tatum
Oct 10, 2025
Meet Tatum
Oct 10, 2025
Oct 10, 2025
RMRA’s 7th Annual Mardi Gras Fête was a smashing success!
May 8, 2025
RMRA’s 7th Annual Mardi Gras Fête was a smashing success!
May 8, 2025
May 8, 2025
Therapies for individuals with Rett Syndrome
Dec 19, 2024
Therapies for individuals with Rett Syndrome
Dec 19, 2024
Dec 19, 2024
October 2024 was proclaimed as Rett Syndrome Awareness Month in Colorado
Oct 31, 2024
October 2024 was proclaimed as Rett Syndrome Awareness Month in Colorado
Oct 31, 2024
Oct 31, 2024
The R4R Spring 2026 Online Auction is Now OPEN!
Get ready to bid on incredible items and experiences while supporting a great cause.

⏰ Bidding Closes: Saturday, April 25 at 8 PM (MST)

Click the link in our bio to check out the online auction. Happy
April 10th is National Siblings Day! There are so many amazing siblings in our community who show up with strength and love to care for their brothers and sisters daily. Siblings are warriors! 
🫂💜
Visit our website to read our Sibling's Day blog fr
Tight Lines for Tillie: A Fundraiser Supporting the Rocky Mountain Rett Association 💜

Join the Tinsley family as they fundraise for the Rett Clinic at Children's Hospital Colorado. Tillie has a powerful story, and is now a 2nd grader with physical
Ascend 2026, the Rett Syndrome National Summit, is scheduled for June 30-July 3 in Prior Lake, MN. This event is an excellent opportunity to connect with other Rett families, clinicians, and researchers. Visit https://www.rettsyndrome.org/families/re
Our 8th Annual Mardi Gras Fete was a great success! 
Thank you to everyone for your generous support - We are deeply grateful to our sponsors, donors, volunteers, speakers, performers, and every guest who showed up with heart and generosity. It takes
The countdown is on - just four weeks to go! R4R's Spring 2026 event is nearly at capacity, and we don't want you want to miss this one. If you're planning to join us, now's the perfect time to secure your spot! Click the link in our bio to learn mor
The Rett Clinic at Children's Hospital Colorado offers support for a variety of different diagnoses - including Rett Syndrome, CDKL5, and FOXG1 Syndrome.
In 2025, the Rett Clinic at Children's Hospital Colorado welcomed an all-time high of new patient and follow-up appointments. It is because of your donations and generosity that it has been possible to for the clinic to be able to offer more clinic d
Honoring Tristen at Mardi Gras! Thank you for your incredible dedication to the Rett Clinic! You will be missed 💜
Jaden was such a great addition to our Mardi Gras party! Everyone loved the coin toss - what a great way to get people up and moving for a great cause. We are so grateful for our partnership with 9News! 

@9newsdenver @j.knowles12 @drewcarneytv
We absolutely loved having Drew Carney as our emcee for our 8th Annual Mardi Gras Fête! He did a fabulous job and truly brought so much energy to the event! 🎤💃 

@9newsdenver @drewcarneytv
Visit our website to read our newest blog, an overview of Medical Biases and Misconceptions Impact Diagnoses in Males With Loss of Function MECP2 Variants, a research paper by Talia Thompson and many other professionals. 

The paper found that  Rett

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