COVID Update: Advice Regarding Returning to School
This post was originally posted on Rettsyndrome.org and written by Dr. Tim Benke, Rettsyndrome.org Medical Advisor and Rett Clinic Director, Children’s Hospital Colorado.
While we do not have any specific data, such as reports in the literature, children with Rett syndrome may be at high risk of complications due to Covid-19. Children with Rett syndrome are prone to stereotypies in which they constantly bring their hands to their mouths. Not only does this make it difficult to wear a mask at all times, but it makes it difficult to continuously keep the child’s hands clean. These issues increase the risk of exposure to Covid-19.
Currently, the recommendations from the American Academy of Pediatrics (AAP) in regards to attending school and wearing a mask are listed on their page. Please note that these may change as the situation evolves, especially with the development of a vaccine.
It is recommended that special needs children return to school if it is safe in the estimation of the parent and school based on the AAP guidelines. School is often the primary provider of therapies, and patients with Rett syndrome have regression or stagnation of skills without the provision of regular therapy. Each family and school district must weigh the risks and benefits based on their individual situations.
Recommendations, based upon the current guidelines, are that the following steps should be undertaken to help protect the child in consideration of returning to school:
The child should wear a cloth mask if they are able to tolerate it.
The child’s hands will be sanitized multiple times a day to attempt to decrease germs being introduced.
Teachers, therapists should wear masks at all times.
If possible, other students should wear masks at all times.
Social distancing (6 feet), as recommended by the AAP and CDC must be observed as much as possible.
Consideration of school attendance on a reduced schedule limited to allow participation in therapies only in order to further increase social distancing.
Consider asking your child’s physician to provide a letter to the school with advice. This advice may include a recommendation, based on your situation, regarding return to school versus staying at home.
