Rett Clinic Town Hall
On September 19th 2020, Rettsyndrome.org in collaboration with the Rett Clinic team at Children’s Hospital Colorado organized a Town Hall.
Guest Presenters:
Children's Hospital Colorado: Dr. Tim Benke, Rett Clinic Medical Director
Rocky Mountain Rett Association board member and Rettsyndrome.org State Representative: Heidi Hedges-Greenall
Rettsyndrome.org: Paige Nues, host
The following topics were discussed:
Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family?
You can now listen to a recording of the town hall:
