First-Ever Treatment for Rett Syndrome has been approved by the FDA

Decades of research has paid off! The first-ever treatment for Rett syndrome, Trofinetide, has been approved by the FDA!

This is a HUGE milestone for our Rett community!

The company behind Trofinetide is Acadia (who also sponsored RMRA's Mardi Gras Fete - thank you!) and the brand new treatment will be available under the name DAYBUE™ [day-BYOO].