This is a list of resources for Rett families. Please be aware that we do not endorse any of the companies listed here, so please do your own research before doing business with them. If you know of a resource that would be helpful to have listed here, please let us know by emailing us.

More resources can be found on the Rettsyndrome.org website – regional for CO and national.

Adaptive Lifestyle Options/Adaptive Sports:         

Clinical Trial Update: 

Colorado Medicaid Waiver:

Family Advocates and Assistance

Fun things to do with your child:

Handicap Vans:

Home Accessibility:

  • The Home Wheelchair Ramp Project – http://wheelchairramp.org email: jimwi@mcil-mn.org or homeramps@gmail.com (Website contains complete instructions for building a ramp.)

Medical Equipment and Healthcare Supplies:

Neighborhood Schools and Education:

Palliative Care:

Resources for Educators and referring professionals:

Resources in Spanish:

Respite:    

Vacations: