This is a list of resources for Rett families. Please be aware that we do not endorse any of the companies listed here, so please do your own research before doing business with them. If you know of a resource that would be helpful to have listed here, please let us know by emailing us.

More resources can be found on the Rettsyndrome.org website – regional for CO and national. And don’t forget to stay in touch with us on social media and sign up to our newsletter!

Adaptive Lifestyle Options/Adaptive Sports:         

Clinical Trial Update: 

Colorado Medicaid Waiver:

Family Advocates and Assistance

Fun things to do with your child:

Handicap Vans:

Home Accessibility:

Medical Equipment and Healthcare Supplies:

Neighborhood Schools and Education:

Palliative Care:

Resources for Educators and Referring Professionals:

Resources in Spanish:

Respite:    

Vacations:

Other: