Recap – 2nd Rett Clinic Family Symposium

Thank you all for coming to the 2nd Rett Clinic Family Symposium

The second Rett Clinic Family Symposium was held on September 30th 2017. The event was organized by the Rett Clinic at the Children’s Hospital Colorado and sponsored by Rocky Mountain Rett Association. Six clinic specialists and guest speakers were on site to discuss a range of topics for families, who have a child with Rett, CDKL5, MECP2 Duplication and FOXG1. Eighty people attended the event.

We would like to thank all speakers for providing insights into their area of research.

Tim Benke, MD, PhD, Medical Director, Rett Clinic and Research Director, Neuroscience Institute:

Rett Clinic Update and Research Tim Benke from Ursula Webhofer

Scott Demarest, MD, Neuroscience Institute:

Rett Clinic Update and Research Tim Benke from Ursula Webhofer

Dr. Edwin Liu, Digestive Health Institute, Children’s Hospital Colorado

Gastrointestinal problems in Rett and Rett-like disorders- Dr. Ed Liu from Ursula Webhofer

Ellen Mazel, CVI Program Manager, Perkins School for the Blind

Cortical Vision Impairment Ellen Mazel from Ursula Webhofer

Colette Christen, Family Navigator, Neurology

Identifying community resources - Colette Christen from Ursula Webhofer

Dr. Terry Katz, Children’s Hospital Colorado

Anxiety and depression Dr. Terry Katz from Ursula Webhofer